Disability
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Participate And Do Your Part To Make This Better
Thoughts on participation By Christina Coates, HODA Board President I clearly remember the day that…
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Feeling Helpless? Get Out Of That Rut!
In times of heightened activity, it is easy to slip into feeling helpless. We want…
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How To Win This Holiday: Our 2024 Inspiration List
Can you believe that it is time for our Annual Holiday Gift List? Time flies…
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How To Ditch The Holiday Stress And Find Peace
Holiday stress can be dangerous for people with neurodegenerative disease. Holiday festivities are full of…
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Mental Health, Rare Disease, and You: How To Change Your Mind.
Rare disease diagnoses generally come with mental health issues. Oftentimes, we see depression and anxiety…
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Struggling To Locate Resources For A Rare Brain Disease?
Why does it seem impossible to locate resources that we need to help us sustain…
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The Trauma of a New Symptom
New symptom trauma is a very real thing. I have had more than one conversation…
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Storytelling: Why You Should Tell Your Powerful Disease Story
Storytelling is an important part of rare disease. ‘Share Your Story’. But what does that…
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Why Disability Pride Month is a Great Thing
In the recent past, Disability Pride Month has haunted the corners of my psyche. Living…
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Your Guide to the Best Life: Presenting Our Curated Shopping Guide
Where Are All of the Choices for ME? When you acquire a disability, who says…
