HOD
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Rare Disease Curse: Can It Be More Than That?
I have been feeling that this rare disease is a curse lately. But then, I…
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Being Angry Is Easy. Giving Grace Is Difficult
Being angry is easy. Justifiable anger has fueled the lion’s share of my life. I…
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Participate And Do Your Part To Make This Better
Thoughts on participation By Christina Coates, HODA Board President I clearly remember the day that…
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Feeling Helpless? Get Out Of That Rut!
In times of heightened activity, it is easy to slip into feeling helpless. We want…
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How To Win This Holiday: Our 2024 Inspiration List
Can you believe that it is time for our Annual Holiday Gift List? Time flies…
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How To Ditch The Holiday Stress And Find Peace
Holiday stress can be dangerous for people with neurodegenerative disease. Holiday festivities are full of…
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How To Make Your Community HOD Aware
Making our community aware plays a vital role in the success of any campaign. This…
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Mental Health, Rare Disease, and You: How To Change Your Mind.
Rare disease diagnoses generally come with mental health issues. Oftentimes, we see depression and anxiety…
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Struggling To Locate Resources For A Rare Brain Disease?
Why does it seem impossible to locate resources that we need to help us sustain…
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The Trauma of a New Symptom
New symptom trauma is a very real thing. I have had more than one conversation…
